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  • XMRV

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  • Danish Conference DVD for sale now!

    Denmark’s first ME/CFS conference was held on May 28th, 2010. See it on DVD.

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  • ESME's Think Tank Panel Calls for Blood Ban

    We, the Think Tank panel of ESME, applaud the actions of the task force and again call for a similar ban to be issued in all European countries. Until the connection between XMRV and ME/CFS is fully understood, it is strongly advisable to prohibit donations of blood and blood components from these patients and irresponsible to act otherwise. We encourage you to contact your government officials and ask them to ban ME/CFS patients from donating blood.

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  • Harvey Alter (NIH) Document with the confirmation of XMRV virus in blood

    Available Presentations of the IPFA/PEI 17th Workshop on "Surveillance and Screening of Blood Borne Pathogens", 26 - 27 May 2010

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  • Belgian National Health Insurance Institute submit two CFS/ME doctors penalty of more than half a million Euros.

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  • IPFA Presentation Harvey Alter (NIH) about confiming XMRV in ME patients and healthy persons

    We (FDA & NIH) have independently confirmed the Lombardi group findings.

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  • Original Press Release from the Netherlands: FDA and NIH confirm ‘XMRV findings’

    Gendringen (NL) – June 22, 2010. The FDA and the NIH have independently confirmed the XMRV findings as published in Science, October last. This confirmation was issued by Dr. Harvey Alter of the NIH during a closed workshop on blood transfusion held on May 26-27 in Zagreb. Two journalists from the Dutch magazine for health professionals, ORTHO, who have been working on XMRV stories for several months, were able to obtain a copy of the Alter lecture.

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  • Response to Comments on "Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome"

    Judy A. Mikovits1,* and Francis W. Ruscetti2 We reported the detection of the human gammaretrovirus XMRV in 67% of 101 patients with chronic fatigue syndrome (CFS) and in 3.7% of 218 healthy controls, but we did not claim that XMRV causes CFS. Here, we explain why the criticisms of Sudlow et al., Lloyd et al., and van der Meer et al. regarding the selection of patients and controls in our study are unwarranted. 1 Whittemore Peterson Institute, Reno, NV 89557, USA. 2 Laboratory of Experimental Immunology, National Cancer Institute–Frederick, Frederick, MD 21701, USA. * To whom correspondence should be addressed. E-mail: judym@wpinstitute.org

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  • Chronic fatigue syndrome: Harvey and Wessely's (bio)psychosocial model versus a bio(psychosocial) model based on inflammatory and oxidative and nitrosative stress pathways

    BMC Medicine 2010, 8:35. doi:10.1186/1741-7015-8-35 Michael Maes, Frank NM Twisk

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  • NU.nl: Amerikaanse bloedbanken weren ME-patiënten

    Bloedbanken in de Verenigde Staten nemen voorlopig geen bloed meer aan van donoren die lijden aan het chronisch vermoeidheidssysndroom ME. Aanleiding is de vondst van een retrovirus in het bloed van de patiënten. Ook Nederlandse bloedbanken gaan 'het beleid heroverwegen'.

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  • Recommendation on Chronic Fatigue Syndrome and Blood Donation

    The AABB Interorganizational Task Force on Xenotropic Murine Leukemia Virus-Related Virus reviewed the risk of transfusion transmission of XMRV by individuals with chronic fatigue syndrome (CFS). The task force presented its recommendations to the AABB Board of Directors, which approved an interim measure intended to prevent patients with a current or past diagnosis of CFS from donating blood or blood components.

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News

  • 15.06.2009 Think Tank mentioned on Sky News
  • 08.06.2009 Conference on ME/CFS in Stavanger is open for patients and relatives
  • 15.07.2010 Danish Conference DVD for sale now!
  • 29.06.2010 ESME's Think Tank Panel Calls for Blood Ban
  • 23.06.2010 Harvey Alter (NIH) Document with the confirmation of XMRV virus in blood
  • News archive

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