On sundhedspolitiker.dk website by Rebecca Hansen
With Anne Gilje, Birgitte Ronning and Dr. Baumgarten about XMRV virus
Et nytt funn gir alle kronisk utmattede et håp om at de kan helbredes med medisin mot det som viser seg å være et virus.
Article in the Norway Dagbladet 13 juni 2009 about the think tank, Prof de Meirleir, patient interview, Prof Saugstad. Photo: Marie von Krogh
10 toponderzoekers in Europa hebben een Denktank ('Think Tank') voor ME opgericht en houden hun eerste meeting op 13 juni 2009. Ze willen een efficiente onderzoeksgroep in werking stellen om het geheim achter de geheime ziekte te ontrafelen die steeds meer levens verwoest. Myalgische Encefalomyelitis, waarbij vaak de term Chronisch Vermoeidheids Syndroom (CVS) wordt gebruikt, is een ziekte die minstens een miljoen mensen treft in de VS, en nog een groter aantal in Europa. -------- (c) 2009 Nieuws.nl
The press release for the launching of the new Think Tank was sent out on Newswire at the week of the launch. In the press release, last years Nobel Prize winner in medicine, Professor Luc Montagnier of France, gives his full support to the Think Tank and says: "Scientists have already uncovered a lot about ME, but this information does not reach professional healthcare personnel, and the disease is still not taken seriously. It is about time this changes."
Irish Medical Times printed a story about the Irish doctor Derek Enlander's participation in the ESME Think Tank in connection with the launch. In the article Dr Enlander clearly states that ME/CFS is a physical disease and needs to be treated as one. He also says about the name CFS: "Chronic Fatigue Syndrome unfortunately was coined in America and the term creates great skepticism. Doctors don’t understand the disease. Then it was given the pseudonym of ‘yuppie disease’ in the popular press, which added to the problem.”
Myalgisk encefalomyelitt, også kalt kronisk utmattelsessyndrom, er en sykdom som rammer rundt 15.000 nordmenn. Sykdommen er langt mer utbredt i Europa enn mer utforskede tilstander som multippel sklerose og AIDS.Ti ledende forskere i Europa vil finne løsningen på den mystiske sykdommen som rammer stadig flere. 13. juni lanserer de en tenketank for ME i Stavanger med støtte fra fjorårets nobelprisvinner i medisin.
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